Once we had a diagnosis, then it was time to set up an appointment with the pediatric orthopedist. When I called, they said the first available appointment was in April! I had a son in pain who could barely walk on some days and they wanted me to wait four months! I freaked out at first, but was then calmed by a nice friend of my father. This man has a daughter with the same disease. That is quite a coincidence since this disease is only in 5 out of every 100,000 children! He and his family have been very helpful and understanding on this journey.
We called around to some other doctors and were basically told the same thing. It wasn't until a few days later that the doctors office called us after speaking with the doctor who treated us at the hospital and they set an appointment for January 7! That seemed much more reasonable.
We took Wyatt to what he called the 'leg doctor' on January 7, 2010. They took another x-ray and said there was more degeneration in just the past two weeks! He proceeded to tell us that Wyatt would not be living a 'normal' little boy lifestyle for a while. He said the best treatment for now is to keep Wyatt from running, jumping, or putting too much pressure on his right leg. Seems easy enough, but for those of you that know Wyatt, that order seems impossible! Some days are better than others, and the pain and limping come and go on different days. He wakes up at night and cries that his knee hurts a couple times a week. We give motrin as needed on the tough days.
The doctor said he would turn in the paperwork for Scottish Rite Hospital for Wyatt. The medical bills were already piling up from x-rays, MRI, doctor appointments and ER visit!
We found out on January 13 that Wyatt was accepted into their program. That was a huge answer to prayer. A huge weight was lifted from our shoulders once we knew we would be treated by the best doctors in the state and a bonus that it would all be paid for!
Natalie, thanks for all of the information. You all will continue to be in my prayers. I will be checking in regularlly. Love the pictures of Wyatt.
ReplyDeletewow...what a challenge you guys are facing! Of course we'll be praying ... not only for healing for that precious little guy ...but for lots of strength for his mommy & daddy!!!
ReplyDelete